As part of the innovation boosters digital health nation and databooster, powered by Innosuisse, we want to invite you to a webinar about the promises and problems of clinical data reuse.
Welcome: Yana Yoncheva, IB Digital Health Nation & Dr. Gundula Heinatz Bürki, IB Databooster.
Health Data Repository for Data Driven Clinical Research by Dr. Sebastiano Caprara will open the program. A paradigm shift toward electronic health records, and extension of these to include clinical research datasets, is rapidly gaining momentum but requires effective interlinking of patient data. As the main goal of the Health Data Repository – HDR – project is to develop a digital platform at the Balgrist University Hospital that can be modularly integrated in the flow of medical and research data within a hospital local digital environment, focusing on structured clinical data and research cohorts. The first step of its data integration approach aims at data harmonization between the hospital and its different departments. The HDR API (Application Programming Interface) layer is able to connect to multiple clinical IT systems, extract relevant data, map it to a target standard, and de-identify the data for research purposes. When queried from clinical systems, the data is mapped to standardized models, aligning it with ongoing national and international efforts in terms of terminology.
The HDR – project aims to leverage standard data models and ontologies to improve research quality and facilitate academic collaborations, but is also preparing the clinical IT infrastructure to facilitate the integration of innovative digital tools and data-driven medicine results in daily clinical processes.
At the second part of the webinar Prof. Dr Thomas Bürkle will introduce in the topic of clinical data reuse with examples from large hospital environments e.g. integrating routine data into cancer registry or for research purposes and using genetic data for drug therapy decision support.
On a technical level, the tasks of integration and interoperability on technical, semantical and workflow level will be discussed and a critical retrospective of achievements and drawbacks will be presented.
We will wrap up the program with a dedicated Q&A time.