Democratizing the Health Data Ecosystem: From Challenges to Solutions
The digital transformation of healthcare relies, among other things, on the responsible and effective sharing of clinical data. While the potential is tremendous—enhancing patient care, enabling medical innovation, and making healthcare systems more efficient—real-world implementation comes with significant challenges.
This workshop places a spotlight on the real-world challenges of health data sharing: technical, ethical, regulatory and organizational. By bringing together stakeholders from academia, industry and the public sector, we aim to create an open forum where obstacles can be discussed, and lessons can be shared. The primary goal is to explore the complexities of sharing clinical data in practice, what has worked, what has not, and how we can move forward together.
Workshop structure
The workshop is divided into two main parts, each designed to encourage open discussion, learning and collaboration:
Part 1 – Facing the Challenges Together
Session 1: Speed Presentations & Panel Discussion: Challenges Matter – Tell Us Yours!
In this session, our speakers will share their experiences and challenges with health data sharing, offering first-hand insights from research, healthcare, industry and public sector perspectives:
- Thomas Geiger, SPHN
- Bebeka Cosandey, Research Center for Clinical Neuroimmunology and Neuroscience Basel, CLINNOVA Project
- Elke Mittendorf, University Hospital Zurich, USZ
- Sibrand Houtman, Gesundheitsdepartement Basel-Stadt
- Thirupathi Pattipaka, Novartis
The presentations will lead into a panel discussion moderated by Astrid Kiermaier (Leader in Personalized Healthcare in early R&D at Roche).
Session 2: Pitching Solutions
A series of brief presentations showcasing concrete solutions, either in use or in development, that address clinical data-sharing challenges:
- Davidi Bachrach, MDClone
- Alexander Karagyris, MLCommons
- Sabine Österle, SIB & SPHN
- Philipp Mann, Owkin
Part 2 – Real-World Examples: Turning Vision into Practice
This session highlights practical case studies of democratizing health knowledge from the perspective of three healthcare providers inside and outside of Switzerland:
- Bram Stieltjes, Head of Personalized Health Basel and Department Head, Research and Analytic Services at University Hospital Basel, Switzerland
- Christopher Boehlke, Department of Clinical Research, University Hospital Basel
- Ronen Loebstein, Director of the Institute of Clinical Pharmacology and Toxicology, and ADAMS Data Center at Sheba Medical center, Tel Hashomer, Israel
Join us afterwards for informal networking over drinks and snacks.
