Democratizing the Health Data Ecosystem: From Challenges to Solutions

The 8th workshop of the “Personalized Health Series” is jointly organized by Personalized Health Basel (PHB) and DayOne.
The digital transformation of healthcare relies on the responsible and effective sharing of clinical data. While the potential is tremendous – enhancing patient care, enabling medical innovation, and making healthcare systems more efficient – real-world implementation comes with significant challenges.
This workshop places a spotlight on the real-world challenges of health data sharing – technical, ethical, regulatory, and organizational. Whether you’re working to improve data infrastructure, navigating compliance, or experimenting with tools like synthetic data or federated learning, this workshop is an opportunity to engage with peers facing similar hurdles and to foster collaboration across sectors.
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The workshop is divided into two main parts, each designed to encourage open discussion, learning, and collaboration:

Part 1 – Facing the Challenges Together
Session 1: Speed Presentations & Panel Discussion: Challenges Matter – Tell Us Yours!
In this session, our speakers will share their experiences and challenges with health data sharing, offering first-hand insights from research, healthcare, industry, and public sector perspectives:
Thomas Geiger (SPHN): Leads initiatives at the Swiss Personalized Health Network to enable nationwide interoperability and data sharing in health research.
Bebeka Cosandey (Research Center for Clinical Neuroimmunology and Neuroscience Basel, CLINNOVA Project): Leads Scientific Project Manager in Clinnova, an EU-wide, cross-border initiative advancing federated digital medicine and collaborative health data use.
Elke Mittendorf (University Hospital Zurich, USZ): Brings hands-on experience from a Swiss hospital, addressing the practical and regulatory hurdles of clinical data sharing.
Sibrand Houtman (Gesundheitsdepartement Basel-Stadt): Provides a public sector perspective on policy, governance, and data management in healthcare.
Thirupathi Pattipaka (Novartis): Drives innovation in data use within the pharmaceutical industry, exploring solutions for secure and ethical data sharing.
The presentations will lead into a panel discussion moderated by Astrid Kiermaier (leader in Personalized Healthcare in early research and development; Roche). The audience is invited to actively contribute questions and share their own experiences.
Session 2: Pitching Solutions
A series of brief presentations showcasing concrete solutions, either in use or in development, that address clinical data sharing challenges. We warmly invite you to actively participate in the event by submitting an abstract on your proposed solutions. Selected submissions will be invited to pitch on stage.

Part 2 – Real-World Examples: Turning Vision into Practice
This session highlights practical case studies of democratizing health knowledge from the perspective of two healthcare providers inside and outside of Switzerland:
Bram Stieltjes (Head of Personalized Health Basel and Department Head, Research and Analytic Services at University hospital Basel, Switzerland): Presents the implemented solution and related use case(s) exemplifying data sharing with internal and external parties.
Ronen Loebstein (Director of the Institute of Clinical Pharmacology and Toxicology, and ADAMS Data Center at Sheba Medical center, Tel Hashomer, Israel): Gives insights into their approach to data sharing and synthetic data use in clinical environments.
16:30 – Networking Apéro: Join us afterwards for informal networking over drinks and snacks.
For further information
Workshop “Democratizing the Health Data Ecosystem: From Challenges to Solutions”